Surgery

Looks like we are on our way to surgery today. From the x-rays we know that there is some type of obstruction -- what we don't know is exactly where,  if it full or partial, and if there has been any permanent damage to the site of the blockage. It has been explained to us that there is a 50% chance that it is a partial block caused by scar tissue that can be snipped away. In this case, recovery will be pretty quick, about 2-5 days. There is a 40% chance that it will be a complete blockage and that will require them to remove the blocked section (how much will depend on the amount and level of damage) and stitch the ends together. This will be a longer recovery time (up to 2 weeks). There is a 10% chance that they will have to cut away the damaged section and not be able to reconnect. This would require them to place two "stomas" (holes in his tummy) and there will be bags connected to them to catch his waste. It is then a near certainty that in about 8 weeks they will be able to go back in and reconnect it. (Praying that we don't find ourselves in the 10%)

So, much is unknown as they move forward...how grateful we are that none of this surprises God and that He will give us all we need no matter the outcome of the surgery.

We are anticipating him going in about 11:30......not sure on the exact time. We will try and keep the blog updated and are so grateful for all of your prayers!!!

Introducing ....Noah!

No new information today. We still irrigate and wait. Unless he starts to show signs of pain, his stomach begins to enlarge, etc.....we keep on this course. They just don't know the whys.

I realized that many of you have never actually met Noah in person....and that it would be nice to introduce him to you through video. Keith and I had very sweet time with him today. He just laid his head on my chest for the longest time ....content to just rock, eyes open. How I love that!


It is worth putting up with our baby talk voices to hear his sweet talking and laughing!

SO, without further ado.....we bring you Noah:






Merry Christmas!!

Today....

......not much happened. We are still waiting for the barium to move out of his colon. The x-ray showed that it hadn't changed a whole lot. They irrigated twice today and we will get a new x-ray in the morning. I saw a nurse that I got to know during our initial seven week stay. She said that during shift change she had heard the word that, "Noah is back. Boy, is he in love with his Mommy." Oh my....melt my heart! I assured her that the feeling is mutual. How God does this amazes me....knits our hearts.

So, I struggle with the waiting....with the leaving my kids at home......and really with leaving my baby every night. Praying for wisdom for the doctors and God's hand to touch Noah and bring him home!!!

This was the face that met me today when I got to the hospital....



And this is what I got to do....



Now that his IV line is in his arm I can cuddle with him better -- and we both love that!! What a great gift!

The plan for today was to get an x-ray to see if the barium was all gone from the test on Tuesday. Since his bowels aren't moving, there was a large amount left and so they tried to irrigate it and flush it out. It is pretty thick and so this will not be a one shot process. They will come in later today and irrigate again and take another x-ray in the morning to see where we are. As soon as the barium is gone we can move on to the small intestine and see if there is a blockage there.

This is a real puzzle because it looks like there is either a partial or complete blockage, but he isn't acting like a baby whose intestines are blocked. He is happy, content, and in no pain. If there were a blockage he should be looking like a sick baby. So, the doctors are just getting one piece of information at a time and trying to build an accurate picture of what is going on in his belly. If there is a partial blockage, it may clear itself, or it may require surgery. If there is a complete blockage then it will be surgery for sure. We would love to avoid that!

On an interesting note, we had two GI doctors in our room to look at him yesterday. One of them was named Dr. Farrell, and I thought that was interesting since one of the pieces of equipment we use on Noah's GI tube is called a Farrell bag. Keith asked about it and he is THAT Dr. Farrell. Not only that, but he is the Chief of Staff for all of Cincinnati Children's. You would never know it to meet him, his demeanor was very unassuming and he is very approachable. Grateful that we have such knowledgeable doctors on Noah's case!

I brought this boy with me today.....



Several months ago he was unsure about the whole big brother gig. Who can blame him -- being the baby is a pretty great spot to be in! What a difference a few months can make! He came to me last night sobbing because he was missing his baby brother. What a sweet heart this little guy has! How I love him!!

Home 4 Christmas?

"Will Noah be home for Christmas?" is a common question around our house right now. "We don't know," is the familiar, and frustrating answer. Our sweet baby is still in the hospital, and we really don't have the answers yet to explain why we are here. It started as dehydration from vomiting, which came on suddenly on Friday night. Now we are trying to figure out why his bowels aren't moving gas or any of the other things they should be moving (OK, I guess there is just ONE other thing).

What we are learning about him is that his extreme prematurity, and subsequent long hospitalization, make everything more complicated. His tiny veins have been used so many times for IVs, etc, that they just don't work that well for access anymore. It is extremely difficult to get an IV in him, and once he was dehydrated it became impossible. They had to go right in the bone on his leg.....we hadn't ever heard of that before (and weren't real thrilled to hear about it at all). It saved his life because he was really starting to take a turn for the worst quickly. The ER doc said he wasn't worried when we came in, but two hours later they were all very worried. Poor guy was so lethargic that he didn't even cry through all of it, but his heartrate told the tale when it was beating at over 200 times per minute. It HURT!!

By God's wisdom and grace we are at one of the top 3 children's hospitals in the country, and they are actually ranked #1 for gastric issues, so we are hopeful that the real cause will be found soon. He is no longer in pain, but he is unable to eat until we figure out why things aren't moving through his system. Everything he is getting now is through the special line that they put into his inner arm.

They ruled out an obstruction in his colon and now we wait for the barium to all be gone from that study and move on to an upper GI to make sure there isn't a blockage in the small intestine. This could be tomorrow, or the next day. An x-ray in the morning will tell us if the barium is all gone. His medical records from Florida paint a very incomplete picture of his first 8 months of life, so it is like starting from scratch in many regards.

So, it is highly unlikely that he will spend his first Christmas as a Williams at home. We are sad, but hopeful that this will be good in the long run and give us some answers about what is going on in that belly of his.

We appreciate your prayers -- they encourage and strengthen us to keep advocating for our boy -- anyone who has had a child in the hospital knows that this can be a very draining experience. Our love for him only grows deeper, and we are so grateful that God has allowed us on this journey with Noah.

Blessings to you all this Christmas!!

Of Frogs, Playing Cards, and Ponytails

Day three with our Lilly is coming to a close and we continue to fall more in love with her by the minute! She loves both to laugh and make us laugh. She has shown us so many endearing behaviors that are evidence of how seamlessly she will fit in to our crazy family!

For months before the trip I spent so much time trying to figure out what type of toys to bring for her to play with. I really had no idea what she liked so I just tried to hit the major play groups. I knew we would spend most of the week in the hotel room and I wanted her to have things to do. So, three days in we have a winner...........




Yes, it is a pack of playing cards and a green frog bath toy! She carries the cards with her everywhere -- even sleeps with them near her. We have had to put a Strawberry Shortcake bandaid on them to keep them closed because she doesn't want the cards to fall out, she just wants to hold the box. We have developed a game we play regularly. She sits at one end of the bed and I sit at the other and she uses the deck of cards as a paddle and hits the frog to me. I catch it (most of the time) and then he hops and ribbits back to her. Over and over and over........ :) The rest of the toys sit in the suitcase. I believe this falls under the universal, "Why did we buy her Christmas presents when all she wants to play with is the box?" parental reality. It is wonderful to be discovering her and what she likes and doesn't like.

There is one phenomenon that I am experiencing with her that is new to my parenting experience. She actually likes to have her hair washed! She asked me to wash it for her today in the bath -- twice! Amazing! She LOVES to wear jewelry, have her nails painted and her hair in a ponytail. It is so cute -- she knows how to use her hands to tighten her ponytail. She is a real beauty, but at the same time she is also rough and tumble. She loves to climb, jump, and get on the floor and play.



She also is a great eater and we have enjoyed our time in the hotel restaurant. The food here is really delicious and Delaney and I are having fun trying new things.



Tomorrow is a big day for us -- a medical appointment for Lilly, which is a requirement for us before we leave, and our visit to the US Embassy to do some paperwork. Friday we get our passport and immigration paperwork delivered and then Saturday we head home EARLY in the morning. We are so excited to get her home to meet the rest of her family!

We Have Our Girl!

Greetings from Sofia, Bulgaria!!

We are grateful to report that sleeping on our couch tonight is one Lilly Caroline Williams! Before I get into the joy that has been today I want to back up a bit. We are SO grateful to God that we easily made every one of our connections! We had great seat mates each leg of the trip, and short of a bit of turbulence landing in Sofia, the trip was as smooth as could be!





Can you tell which one of these pictures was taken at the beginning of our journey and which one was taken close to the end?? Just look at the "older" woman who apparently doesn't travel as well as the young chick! Boy, I felt about as good as I looked! On our first trip to Bulgaria my sleep suffered. I am SO grateful that God blessed me with fantastic sleep last night! I got a full 8+ hours and it made a world of difference!!





We headed out at 7:00am and were at the orphanage by about 8:45. We visited with the director for a bit and it was so clear that they love her very much. She said several times how much they will miss her, but they are so glad she has a forever family. Then the moment we have been longing for -- in she walked! They had dressed her up and fixed her hair and it was adorable!



It was clear as we made our way to the car that many had a hard time saying goodbye to her. One sweet little boy was sobbing! They did an excellent job of preparing her for this change, and she had her brave face on. She did so well! She clung to my arm and there was a real storm of emotion moving across her face. All of the things she was seeing were new to her on this car ride. She has ridden in a car maybe once or twice in her life. She did so well! I had prepared myself for the worst and was, once again, blown away and my expectations superseded!





We came back to the hotel, and after lunch we got right down to business! I was holding her and she pointed to my painted toenails and then to her toes and the fun began! She is certainly a girly girl! She changed her clothes three times today -- picking out her own outfits! So far language has not been a barrier. She very easily communicates with us and is very gentle and sweet. She had what seemed to be her first bath. It was a real treat to be able to share that with her and watch her wonder at the bubbles and sitting in the water. It was wonderful! We have had a fantastic first day together. We have been blessed beyond measure and I can't wait to see what tomorrow brings!!

So grateful for your prayers, love, and support!!!!!